Saturday, June 23, 2012

Coming to Terms

My husband was diagnosed with Crohns disease nearly 6 years ago, but was probably undiagnosed for quite a long time. I am thankful that he has not been chronically ill, or I should say, constantly ill as some with Crohns disease can be, although when he does have a flare up they tend to be big ones. In the near 8 years we have been married, he has had 2 significant flare ups, one of which revealed a diagnosis of a rare skin condition also associated with the disease. He has been on medication for the last 3 years. It took a long time to come to terms with the reality that he had been sick for a long time and would require medication, but he has done very well. We now have 3 kids together, all of which are healthy and beautiful. Having recently gone through a significant flare up and finding no support in our area, we are starting this blog as a way to reach out to others, regardless of location in hopes that we can connect with people and families who also have Crohns disease, and also offer support. We live in a small town where specialists are at a minimum 4 hours away and most people have no idea what Crohns disease is, and doctors do not know how to properly treat it. Having gone through what we have together, and out of concern for our kids who have a chance at also being diagnosed with the same disease later in life, we've agreed to become as educated as we can and also to get involved as much as we can in bringing awareness to this common, yet misunderstood chronic condition. We are certainly not experts. We are simply a family learning to cope and care for one of our own. Hence, the name of our blog. We hope you find some encouragement and support through this blog, if nothing else, and wherever you are in your diagnosis, please feel free to share that too.

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