Tuesday, June 26, 2012

SCD, Doctors, and Tortilla Chips

So in the past few weeks my hubby and I have been doing a lot of research on self-treatment by diet, and came across the Specific Carbohydrate Diet (SCD). While he has been apprehensive to adjust his diet, he has quickly attached himself to this, and so it has sent us on quite a thrilling adventure! Lots of new things to try, and actually it's been great to hear him notice how he feels when he eats something "illegal". Considering the last 3 years he has relied on medication to keep his symptoms in check, I'm excited to see how this will affect him overall. Sadly, I am sitting here eating tortilla chips (gluten free), and salsa....and tired. It's been busy, and in truth, it's a lot of work suddenly doing EVERYTHING literally from home. I do a lot of cooking anyways, but I feel like this has sent me into turbo mode trying new things, adjusting things and just simply the time it takes to run a house, feed a family of 5, and whatever. 3 kids require a lot of attention and so I really have to plan my time wisely, which I am having to figure out fast. Does anyone else follow SCD? How was the adjustment period for you? We are really in our 2nd week and we have actually been enjoying the changes, but yes, there is definately an adjustment period. Like tonight, we are low on groceries, I am tired, and my hubs has taken our two older ones out for dinner, at imnotsurewhere. Anyways, my hope is that after some time he will really have a better idea of what food affects him, but moreso that he will learn to have better control of his symptoms. For more info on this you can visit breakingtheviciouscycle.info. He also had an appointment today to check on his skin wounds, which he was worried were getting infected again. I think he has nearly met every doc in town! He ended up meeting with the resident wound specialist who knows some, but not all about his condition. It ended up being somewhat educational, and so we continue on in this. It was a great reminder to continue to educate ourselves and to learn to do self-care. Regardless of your Crohn's symptoms, I think this is huge, because depending on where you live, and the availability of doctors there are probably times when you will have to help yourself a bit. His specialist is back in the city 6.5 hours away, and our family doc here works at the hospital every other week so it can be hard to see him on short notice. I read recently that GI patients are waiting upwards of 4 times the expected wait time to meet with doctors. I'm not much surprised by this as when we make an appointment with his GI doc there is usually at least a month wait, if not more, unless it is an emergency (which it is usually not). But for those patients who are in really rough shape, or who are in the process of getting a proper diagnosis, how do you/they cope in the meantime? Our GI specialist in Calgary now only works 1 1/2 days a week (a WEEK) and she is excellent. I wonder what it would take to get more docs trained in this field because they are clearly needed.

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